Alfie Evans
British child, neurodegeneration disorder
Died when: 1 years 354 days (23 months)Star Sign: Taurus
There was a legal case in 2018 involving Alfie James Evans (9 May 2016 – 28 April 2018), an infant boy from Liverpool with an undiagnosed neurodegenerative disorder, later revealed to be GABA-transaminase deficiency.
The medical team and the child's parents disagreed about whether to maintain Evans' life support or to withdraw it, resulting in a legal battle.
Alder Hey Children's NHS Foundation Trust sought a declaration that continued ventilatory support was "unkind and inhumane", and not in Evans' best interests.
Alfie's parents, Kate James and Thomas Evans, contested the application.The ventilatory support was removed on 23 April 2018 following a series of unsuccessful appeals from Alfie's family.
Alfie continued to breathe naturally for five days after the removal of his breathing tube.He died at 2:30 a.m. on 28 April 2018.